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Sheila-R
#1 Posted : Friday, February 05, 2010 11:55:37 PM Quote
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Joined: 1/29/2010
Posts: 264
Smile Decided to join last week and an attempting a first post. Not quite sure what to add other than was diagnosed with RA in May 2008. I seem to have been lucky in that I've gone through the gambit of various pain killers, steroids, methrotrexate, sulphsalazine, humira and enbral quite quickly. Am booked in to have first ritiximab at end of Feb, so although a little nervous about this day, am looking forward to trying something that might help. Sorry can't find the spell checker on this. It looks like the forums with be really helpful.
MaryLewis
#2 Posted : Saturday, February 06, 2010 12:10:21 AM Quote
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Joined: 12/3/2009
Posts: 585
Hi Sheila
welcome to the forum
I am Mary L and have had RA for the past 14 years I also have MS only had that for 3 years but found out last year
you have been through quite a few drugs
sorry you do have this awful illness you have come to the right place where you will get a lot of help support and you will have a bit of fun too
you must be careful on here there are a few strange insane people on here
you are ok with me I am one of the sane ones ThumpUp
look forward to getting to know you better
take care
Mary L
Sheila-R
#3 Posted : Saturday, February 06, 2010 12:44:25 AM Quote
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Posts: 264
BigGrin Hi Mary,
Thank you for the warm welcome, especially at the late hour, I am usually sane but do have my moments of insanity and rage when I can't walk. the RA mainly affects my knees, feet shoulders and wrists, oh and once when at the dentist I couldn't open my jaw enough for him to see my teeth! My fingers and thumb joints have their off days. But as I say reading some of the posts where folk have had to wait ages for treaments or can't tolerate the drugs I seem to have been fairly lucky.
Sorry to hear you have MS alongside the RA that can't be very nice.
Thanks again for replying
Best wishes
Sheila

lizziemouse
#4 Posted : Saturday, February 06, 2010 8:32:32 AM Quote
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Posts: 872
Hello Sheila and welcome to the forum!
So sorry you have RA but very glad you found us - this site is magically supportive!
I m Liz - married to Paul and we have two girls Sophie and Jess - they keep me sane (just about!)
Look forward to hearing from u and sharing good times and support thru any bad times which we all hope are few and far between.
Take care love Liz xxxxx

merryberry
#5 Posted : Saturday, February 06, 2010 10:00:08 AM Quote
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Joined: 11/28/2009
Posts: 238
Location: North London
Hello Sheila, welcome. Oh don't get me started on jaw pain! Ew I sympathise! I'm amazed at the range of drugs you've tried so far, the humiora and enbrel didn't suit? Or didn't work? Anyway, nice to meet you and speak to you more soon, xfx
Debbie11
#6 Posted : Saturday, February 06, 2010 10:24:29 AM Quote
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Posts: 235
Hi Sheila and welcome to the site!!!

Deb x
joeyvt
#7 Posted : Saturday, February 06, 2010 10:44:45 AM Quote
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Posts: 441
Location: Bristol
Hi Sheila!

Welcome!!

I'm 39, two kids (6 and 10) and have had RA for six years now.

I've just started Rituximab and had my first infusion last Monday ... got the second one on the 15th.

Hope you have success with it ... all the findings seem to show it works ... fingers crossed!

Joanna
dorat
#8 Posted : Saturday, February 06, 2010 11:04:06 AM Quote
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Posts: 3,157
Location: Huddersfield
Hi Sheila,
Welcome to the forum!
It's taken me 9 years to get through all the drugs you've tried! Except the enbrel, I haven't had that, at the moment I am on humira and mtx.
Glad you decided to join us, you'll get lots of support and advice on here.
Looking forward to getting to know you.

Doreen xx
Damned76
#9 Posted : Saturday, February 06, 2010 12:08:15 PM Quote
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Posts: 1,081

Hi and welcome Sheila - hope you find the forum and useful as I do. It's so helpful to have the support of all these lovely people. I was diagnosed 3 years ago - on 3rd DMARD. Work part time and have a partner and 8 yr old son to "look afer me" LOL. Look forward to chatting.

Julie
barbara-o
#10 Posted : Saturday, February 06, 2010 2:03:14 PM Quote
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Posts: 690
Hi Sheila and a big warn welcome to the forum,

I thought I was doing well going through the drugs, but you seem have topped me. I'm 50, married, have a 23 year old daughter living at home with us and have had RA for a year. Sulf, MTX have played havoc with my liver so I'm now on Humira and keeping my fingers crossed that this drug will work.

love,

Barbara
XXXXX

BarbieGirl
#11 Posted : Saturday, February 06, 2010 3:28:56 PM Quote
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Posts: 1,110
Location: London
Hi Sheila, welcome!!! sorry you have had so much problem with the drugs, you seem to have gone through the lot!! Good luck with the infusions. I hope your MS is not too bad, and that you are doing ok. Oh,by the way, I am Barbara, married to Roy have 2 sons and 2 daughters, both girls at home, youngest is 16 now. Have been diagnosed since July 2009. Still trying to get something that works lol.
BARBARA
jenni_b
#12 Posted : Saturday, February 06, 2010 7:18:23 PM Quote
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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
hi sheila and welcome from me too!

So sorry to read you have had a rough time. been through a lot of drugs myself! That Mary Lewis is really quite bonkers (which is why she fits in fine!!!Tongue )

Im married with 3 children and ongoing crappy disease.... never mind- it really isnt the most interesting thing about me I promise!

Love Jenni xx
how to be a velvet bulldoser
Sheila-R
#13 Posted : Sunday, February 07, 2010 10:03:43 PM Quote
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Joined: 1/29/2010
Posts: 264
BigGrin It has to be a big grin for all your wonderful messages of welcome, where else would you get a welcome like that and all from folk who understand what its like. Thank you so much its great to know there is real support out there. I've been reading some of the other forums over the weekend and have found out so much, like what to expect for the upcoming rituximab. I won't feel so worried now if I feel a bit rough after the first infusion.
By the way , a little about me - am in my fifties, no children, but live with a really supportive partner who is great at adpating things like wood turning me some new really thick saucepan handles that I can get more or a grip on (think he did so he didn't have to cook every day)and putting the sofa on blocks of wood so that I can get off it without throwing myself so far forward I land on the floor, etc etc.
I gave up the day job two and a bit years ago to go back to college and do something creative. It was a few months after that that the joints started to play up and then the diagnosis of RA . I often wonder whether it was something to do with no more stress after leaving work that cracked open the RA door? Who knows, nothing I can do to change that now, so no point in really speculating.
As to the drugs - no I didn't have any problems with the Humira or Enbrel its just that they didn't work and I had to continue with prednisolne all the time. However having been off enbral now for 6 weeks I think it did help a bit, hence being eager to start the rituximab.
Am off to ask a few questions about anemia now on another forum.
Thanks again everyone for your support.
Sheila
Anthea1948
#14 Posted : Sunday, February 07, 2010 10:48:30 PM Quote
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Posts: 327
Hi Sheila

Sorry I'm late welcoming you, but wanted to add my two-penn'orth worth anyway Smile Glad you've found us, but sorry you've got the dreaded RA.

Anthea
amanda_lewin
#15 Posted : Sunday, February 07, 2010 10:53:30 PM Quote
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Joined: 12/3/2009
Posts: 1,582
Location: Oxfordshire
Dear Sheila,

I have just replied to your thread re anemia...Welcome to the forum!

Wow, your partner sounds talented! Lucky lady!

I cannot admit my hubby could re-design my (far too heavy) saucepans but he is perfect in every other way! LOL

I have had RA since a child and am now married to my lovely Mark and we have five children..

Love,

Amanda
rheumatoidymummy
#16 Posted : Monday, February 08, 2010 8:36:32 AM Quote
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Joined: 12/7/2009
Posts: 96
Location: Buckinghamshire
Welcome Sheila,

This site is wonderful - it has been a great help to me since I was diagnosed in Oct 2008. I'm 33, married with a 4 year daughter and a 17 month old son.

I work part time and I'm treated by the rheum team at Amersham hospital - I take a mixture of Prednisolone, MTX and Diclofenic to keep the RA at bay!

Take care

Ju x
jeanb
#17 Posted : Monday, February 08, 2010 3:37:06 PM Quote
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Joined: 12/3/2009
Posts: 3,006
Location: Timperley
Hi Sheila and welcome

I'm one of the slightly saner people on here - just watch out for that Mary Lewis - she really is barking!!

I'm 65 and 3/4, married to the wonderful Steve, one daughter, lovely son in law and two gorgeous grandchildren.

Look forward to getting to know you through the forum.

Lots of love
Jeanxxxxx
MaryLewis
#18 Posted : Monday, February 08, 2010 5:37:28 PM Quote
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Posts: 585
Hi Sheila
please do not listen to Jean or Jenni (you two have cut me to the quickLOL )
I am sane
the doctor has told me
Mary L
prioryc
#19 Posted : Monday, February 08, 2010 6:22:10 PM Quote
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Joined: 12/3/2009
Posts: 854
Hello and welcome to the forum.

Eleanor x
Kathleen_C
#20 Posted : Monday, February 08, 2010 10:12:10 PM Quote
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Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hello Sheila, and welcome to the forum. Sorry I`m coming in so late on your thread : got my dad in hospital so back & forth every day.

I`m Kathleen, married to Nick, two grown-up sons & too little grandsons. We live oop north, in Durham.

Take care,

Kathleen x

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